Terrible Palsy has been described as -

A condition in which onlookers and people in the community tell parents how terrible life must be raising a physically challenged child. This condition manifests itself through pity and audible sighing of those around you. Terrible Palsy can be deceiving because you can be asymptomatic for weeks, months, or even years, and then just when you and your family are feeling really good about your child, it can present itself in the form of a condescending pat on the head or a blessing from an anonymous busybody. Best known treatment is to carry a list of snappy comebacks in your pocket or a large bag of peanut M & Ms.

Quote is Lori Fox at  Special Education Law Blog – an excellent resource for parents.

Moo was born early at 27 weeks.  He is now 6 years old and has two older brothers (Ad 18 and Master C 7) and an annoying younger brother (Scrappy 3).  He loves Star Wars and Transformers.  Hates school.  And my only advice is if you see him hurtling at you at full speed in his power chair – get out of the way.  He isn’t going around you, he is aiming for you!

I’m a thirty something Lawyer who would love a sleep in.  Hubby is my partner in life and partner in law.  He loves escaping the mad house at home.

When we started this journey, I thought that Moo’s CP was the worst thing that could have happened.  I now know it’s not.  Life changes but you adapt.  This blog is about a family getting on with life.

Please leave your prejudices at the front door when you enter.

Print Friendly