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So, did I mention that Moo needs an AAC?

For the un-initiated (a position that I have barely moved past), an AAC is an Augmentative and Alternative Communication Device. AKA a speech device.

It’s not that Moo can’t talk. He can. At times, he can talk really well. At other times, not so good.

The older he gets, the more complicated his speech patterns become, the longer his sentences become, and the less able he is to get through a sentence without running out of breath. And if he runs out of breath, he goes right back to the start of the sentence again, only to run out of breath and voice before he finishes. You may see a pattern developing here.

The other thing is parents understand their children before their toddler voice matures.  But if you don’t have a toddler, you really don’t understand what the kid is saying. Moo’s voice really hasn’t matured yet and sometimes, I think he is Scrappy talking. He still sounds like a toddler and it is as frustrating for him as it is for me.

So after speaking to a speechie, I started looking around at what was available via the internet. And then I had a great big heart attack. I thought a wheelchair was expensive. Most of these devices start at $7K. Where are we going to find the money for that?

And the whole reason for getting a device is to assist him with the complicated thought patterns. We are not looking at a simple device.

I had heard about Proloquo2go from a couple of my favourite web-sites – InkyEd and Teaching Learners with Multiple Special Needs.  I am so lucky to have access to such wonderful web-sites and particularly seeing as though I know Gina in person who is the most creative and resourceful person I have ever met.  Proloquo2go is an application.  It turns your ipod into an AAC, without the huge price tag.

Today, I thought it was the time to try it out.  Moo already had a Ipod touch which he got prior to surgery to keep in occupied while in hospital and at home.  He flicks around it like you wouldn’t believe.  So much so that I had a person recently remark to me that she had judge Moo by his cover until she saw him use the Ipod touch.  That after seeing him use it, she had to go home and rethink the way she judges people.

So after downloading it, putting it on Moo’s Ipod touch, then having to put it on Master C’s Ipod touch (cause whatever Moo gets, Master C has to get too), all I can say is WOW!

Initially I thought the buttons were going to be a bit small for Moo’s stubby fingers.  But then I realised you can enlarge the icons.

I would love for it to have an Australian kids voice.  But the American voices don’t have much of an accent so they will do for now.  I’ve loaded up phrases for Moo such as “When I grow up I want to be a policeman” and “Will you please move out of my way”.  I watched Moo and Master C sit there and speak to each other with their devices.

The next problem is speakers and a mount so that we can put it on his powerchair.  For speakers, I’ve ordered the iMainGo.  I really want the Livespeakr portable speakers but they don’t deliver out of US.  I think I may order them off Ebay instead.  For mounting, I’ve ordered an In your face.  We will see how that goes.  I’m not convinced it will be stable enough but it’s a start and I was thinking I might use it at the gym for my Iphone :-)

What excites me even more is news that the iTablet should be out next year.  I think it is the most exciting prospect for Moo to use at school, home and everywhere in between.  The school uses windows based computers but I’m not putting it in the too hard basket just yet.

What have you discovered lately that you now can’t live without?

  • 12 Comments
  • Lorraine
    14, December0:45

    Hello,

    I’ve just recently stumbled across your website. Not only do you have a flair for writing, but from what I’ve read you’re kids have the BEST Mom!! That’s not why I’m posting though, I’m posting because I live in America and if I can in anyway help you order something for Moo please don’t hesitate in asking!! You could always ship to my address and I could then forward it onto Australia. That may sound creepy coming from a stranger, but I’m an honest soul deep down I really am!! :) Seriously, I’d be more then willing if you find something you really want and they don’t ship to AU, just give a yell and I can help you make it happen.

    Lorraine
    (A Brit living in a COLD and wet Phoenixville, PA USA w/a cousin who lives in Coffs Harbor NSW!! )


  • Mama Terapeuta
    14, December1:00

    Hi there! what an issue this is, right? We are trying to put something out with a table pc (small one). I LOVED your solution, congratulations!!! I think and iPod would be to small for my daughters skills, now the iTablet is another thing…

    Hard topic! But I refuse to pay 7 thousan dolars… Specially because shipped to Chile it end up being like 14k.


  • Rachele
    14, December1:40

    Hey!!

    If you can’t find them on Ebay, I can order them and send them to you if you want!! Let me know!

    Rachele


  • Samuel
    14, December3:06

    Hello,

    It is Samuel Sennott, co-creator of Proloquo2Go here to say that your blog post and story is terrific and inspiring.

    We look forward to serving your son and your family further.

    Cheers, Sam


  • Gina
    14, December12:32

    Hey Jac,
    thanks for the nice comments (shucks)…
    AAC is a great way to go and I am a huge fan of Proloquo2Go.
    Mac isn’t able to access P2Go independently but for a product to be so available and accessible with amazingly proactive developers, I own it and support it regardless.

    Not only will AAC help Moo out and remove some frustrations for him and others, it will promote his language too – it is a great tool for teaching literacy concepts.

    I am pretty happy with the stands from http://www.thoughtout.biz (we have the Naja King but for mounting on chairs etc some of the others might be pretty good).
    btw we use the Nelly voice on slow – it is our preferred kid voice on P2Go.

    Moo is lucky you are giving him the chance of using AAC and we are all lucky we can now augment our kids’ communication for under $600 (iPod + P2Go) if we want to thanks to P2Go & Apple. Once upon a time it was just too far out of reach for most of us.

    How great having Master C and Moo both using it – what a bonus for Moo.
    Gina & Mac


  • Cheryl
    15, December1:44

    Does Moo have a tray on his chair? I have a completely non verbal friend who just simply put velcro on the back of his cell phone (he uses it to text) and velcroed it to his tray. What a low tech solution.


  • Jon
    15, December6:44

    It’s funny you say that about accents. The great Stephen Hawking actually said the same thing about his AAC.
    http://www.hawking.org.uk/index.php/disability/thecomputer


  • bron
    15, December13:06

    Jac, I am so excited for Moo and you! I am so glad he loves it and can access it so well.
    Cooper also got an itouch and the pro program a few weeks back.
    He loves using the little phrase” I am 4 and I love guns, cars and trucks!”
    WE also use the main2go speakers and they have fantastic sound.( thanks to ginas reccomendation)

    It has heaps of potential.

    Bron xo


  • La Donna
    15, December14:40

    JoJo has respiratory problems too – - we started on a speech program called “talk tools” a couple of years ago – it is a sequence of straws and horns that start relatively easy and get increasingly difficult. The process has taught him appropriate sucking/swalling and breathing techniques. The horns, especially, help with controlling his air flow. I am glad you are finding some success w/ assistive devices, but you might look into this program if your speech aide is willing to continue to work w/ Moo on that. Best to you all.


  • Dianne
    23, December7:13

    You know we also have the P2Go for S (again thanks to Gina’s recommendation!) and think that the potential is amazing. Will be looking closely at how you go using it with the addition of these other tools xo


  • Katy
    13, January13:59

    So glad you posted this. Charlie is still small, but that iPhone application makes my heart race. Oh, the things he could tell me! Of course, he’s years away from that, but it really is great the way technology is progressing.


  • sue
    20, January19:21

    hi I have just come across your site I have a son 10 born 13 weeks early with spastic quad cp .Wandering what size ipod touch does Moo use because thinking of getting one for my son .He is able to talk quite well but tends to run out of breath because of tight chest muscles also he tends to fixate on things. He also has autistic tendencys with high anxiety which he is medicated for


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